Monserrat Hernandez My two day hospital stay

Two days ago I had to go the hospital. There was a bit of blood residue coming out of my gastric tube. I want to talk a little about my condition and how I live with it. My mom and I want to create awareness about this condition which has no cure. There are 4 known types of Spinal Muscular Atrophy, I will concentrate on type 1,which is the one I have, also known as Hoffman's Syndrome.It is the most severe and generally affects the baby during the first months of life. When born, babies appear flacid and they don't acquire motor  skills the way other babies do. For example, they cannon lift their head, sit,, or crawl. It also affects the muscles of the respiratory system and digestive system. A mechanical respirator (like the one I have) is needed so that the child can bread the easily. Also a feeding tube that goes into my digestive system is needed so that I can  eat and live. In general, someone with  this condition has a life expectancy of 2 to 4 years, and the main cause of death is complications to the respiratory system.Cases exist where some have lived longer with the help of respirator.