Spinal muscular atrophy has robbed me of my mobility. It's sad to not be able to be like any other normal
normal little girl.I want to grow, there are so many things I want to do (dance, play, jump), and get to know places. My mom tells me to imagine that I'm doing all of those things that I want to do, because in my mind I can think, in my mind, I am free.
I live in a small apartment I have a bedroom,but it's so small, that only half of my medical equipment fits in it. The other half I have in the living room, next to my wheelchair. I don't have a bathroom of my own, and I need it. My pediatrician and rehabilitation specialist have constantly recommended that I be bathed in the bathroom, because I've always been bathed in bed.In the bathroom my wheelchair doesn't fit, and we cannot rebuild the bathroom because this apartment is not ours. That's why I need a bigger place. Even though my parents don't understand much about blogging, we'll continue to post updates. Does anyone have any suggestions for the blog or the pursuit of a new home?
Hola Monserrat, te deseo un bonito dia!
ReplyDeleteHi Monse!!
ReplyDeleteMonse nina linda, ayer hiciste un gran esfuerzo por ir a la Iglesia. Dios sabe de tu esfuerzo.
ReplyDelete