Monserrat Bucket List: Living with SMA Monserrat Singing

About Me

Hello everyone my name is Monserrat Hernandez and I'm 7 years old. I currently live with my parents, my little brother and my little sister in San Diego. I am fighting for my life against this incurable condition called Spinal Muscular Atrophy (SMA) type 1 the most severe. I was diagnosed at an early age and due to my fragile state I lived around 4 years in a hospital. Since I don't know when my life will end, could be any minute or longer, I want to document my remaining time and make my bucketlist come true before my time runs out. I am so much happier now that I live at home.

My Bucket List

1. I ask for your Support to continue to find a cure for SMA.

2. I wish to have an I pad, it has been my wish since last year.

3. Collect angel figurines of plastic,ceramic, porcelain,wood,etc. Would you help me complete my collection.

4. Would love to visit Disneyland but I need a nurse, a respiratory therapist, and a medic with experience with SMA and Ventilator. I would love to meet the princess that I only know through books and T.V.

5. i wish for my own large bathroom where I can enter in my wheelchair and take a bath like any other person. (my bathroom is too small and does not fit)

6. I wish to experience a Jacuzzi. It would have to be cleaned and conditioned for my delicate state of health.

7. Can someone help me contact Ellen Degeneres?

8. My computer is broken and I am not financially able to replace it. I wish for a computer.

9. I wish for a T.V. network to make a report on my condition of SMA, how I live with this illness, so that people can be conscious about this medical condition and support me, as well as others who suffer from SMA.

10. I wish to find a professional painter who will donate their time to paint angels on my bedroom walls.

11. I would like to meet my favorite singers which are Adrian Romero and Manuel Bonilla. They sing Christian music.

12. I wish to have a wooden door for my room that opens frm the top half so that my sister who has autism won't come in and touch my medical equipment.

These are a few of my wishes.

Monserrat Bucket List

HOW TO CONTACT ME

Wednesday, August 7, 2013

Living with SMA Monserrat Singing

No comments:

Post a Comment

Translate

About Me