You only live once,enjoy it,live it! I am 7 years old and was diagnosed with an incurable disease called Spinal Muscular Atrophy(SMA). I have a huge desire to live and grow. I have created a list of wishes that could be my last but some can be possible,and some won't be possible. My blog was created to document the time I spend with my family and friends.I only have one life and I want to live it to the maximum with love and support.
HOW TO CONTACT ME
Monserrat Hernandez (Bucketlist)
5663 Balboa Ave PO Box 168
San Diego CA, 92111-2705
Phone # 619 665-3006
www.monserrathern.blogspot.com
https://www.facebook.com/monserrathernandez08
https://twitter.com/monsebucketlist.com
monserrathernandez08@gmail.comSunday, August 4, 2013
My summer so far.....
Hi everyone! I hope that you all have had a great summer. I am sorry it has been so long that I have updated my status. This summer I have had some good times and very complicated situations. My teachers and therapists have the summer off too so that makes my summer a little boring. With that said I am looking forward to their return. I have had to spend the majority of my summer in bed because of my wheelchair is broken. It is unable to sit in the upright position which keeps my back arched in a very uncomfortable way. My body is unable to tolerate it for very long. i only use it for Doctor appointments and church.My wheelchair is special because it needs to be able to hold all my breathing equipment. My parents can't afford to buy a new one for $8000.00 so if anyone has any info as to where I could maybe get a used one please send me the info. On top of that my parents are also looking for a wheelchair accessible van to purchase. They are searching for a used one but even those cost a lot. My family continues to keep their faith and hope that things will work out. If you have any information with organizations that have these items at affordable prices please send me the info. It would be greatly appreciated. Thank you.
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